The comment about picture 18 is correct. I know this family and this gorgeous little boy, my daughter is suffering the same illness and fate! Wish we all had a Juno to keep our kiddos happy like she does for little Lucas. They both are amazing!!
http://www.facebook.com/pages/Emilys-Dance-our-babys-life-with-San-Filippo-Syndr ome/119166221467136?ref=pb This is the link to my daughter's FB page, and on it under her likes, you'll find Lucas as well as other kids who are going through the same thing.
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http://www.facebook.com/pages/Emilys-Dance-our-babys-life-with-San-Filippo-Syndr
ome/119166221467136?ref=pb This is the link to my daughter's FB page, and on it under her likes, you'll find Lucas as well as other kids who are going through the same thing.